We had the opportunity to go to Children's National Medical Center where Adam will receive his transplant. It was an interesting experience. We met with Adam's doctor and talked for a long time about the procedure and what to expect. We then met with the nurse coordinator and went on a tour of the unit. We were able to see a patient room on the transplant unit. All in all, it seems very nice. It was interesting to me to note that I actually felt "homesick" for Inova Fairfax Hospital where we have received all of our treatment so far. I am sure we will get to know the nurses and the doctors downtown, too, but I sure will miss everyone here.
It sounds like the transplant will go much like a regular round of chemotherapy. We will receive eight or nine days of chemotherapy that will irreversibly wipe out Adam's ability to fight infection, then one day "off", then the day after that he will receive the bone marrow transplant through his central line just as if they are giving him his usual blood transfusion. Then we wait for counts from the new marrow to recover and hope that we don't have many complications, i.e. Graft vs. Host Disease. We were told this process generally takes about six to eight weeks.
5 comments:
Hang in there. We're pulling for you as much as we can. How soon will the Adam Henshaw fund be up and running?
Good luck on everything! It's a quite a journey. Our other friends, who have a little baby preparing for bone marrow transplant, almost lost her when they destroyed her immune system--septicemia set in. May your journey be completely uneventful!
I sure hope you get to have a break at home for a few days! We'll pray specifically for that!
Love you!
Michelle
We are hopeful that things will go well. Adam has shown remarkable resilience so far. We are encouraged by this. We pray that his ability to "bounce back" will bring him home sooner than later. We pray always for your family.
The Whites
Here's hoping you get some home time soon, and that all things go as easily as possible considering the circumstances! I understand the feelings you have about the hospital. I was so familiar with UVRMC, that when Eves was transfered to Primary's I felt totally out of place and confused. Keep perspective and know that within just a short time, that place will become the "norm" and you'll feel more comfortable hopefully. As always, you are in our thoughts and prayers!
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